Please tell your colleagues about 'www.meganappeal.com'
The story in brief up to diagnosis
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please scroll through them.
At around 6 months old Megan started to refuse her milk and the early solid foods she had been weaned onto.
We took her back and forth weekly to the doctors surgery to be weighed and often to see the GP.
Megan was losing weight and this was first put down to ear infetions making her not want to swallow.
Megan was refered to see the community consultant paediatrician at Hexham General Hospital. After a month with no conclusive results as to what was wrong Megan was referred to see a gastroenterologist specialist at Newcastle's RVI hospital, the community consultant advised ourselves that at the RVI Megan would be tested for "lumps, cysts and tumours" we asked did she mean cancer which she confirmed. Those words "lumps, cysts and tumours" were and always will be etched into our minds.
When we met for the first time the specialist who was to look after Megan, the man we were to put our trust into, the man who was charged with making our daughter better, he dismissed out of hand the comments of the community paediatrician, stating, and we quote, "children of your daughters age do not get cancer".
Megan had 3 admissions as an in-patient in the RVI in the following months and despite no progress being made and Megan continuing to lose weight despite the tube feeding being done both at hospital and at home the doctors refused to carry out any tests to see if Megan had "lumps, cysts & tumours", "cancer", the only tests carried out to determine a potential cause for Megan's condition was a sweat test to check for Cystic-phybrosis and a test to see if she had Celiacs Disease, an alergey to wheat and gluton products.
What we now know from Megan's medical records which we only found out years later was that the doctors at the RVI had instigated Child Protection Procedures some 5 months before Megan was eventually diagnosed and that they believed that we, Megan's parents were starving her to death, or MSBP. The Police and Social Services were called in and Child Protection Conferences held, these were held covertly without our knowledge, which is strictly against guidelines laid down. They had grossly mis-read the the signals of parents desperately worried for their acutely ill baby for parents inducing their childs illness to get attention on themselves.
If Megan had not been diagnosed and had died as they said within 4weeks we are sure that either both of us or one of us would have been charged with her murder. At a meeting called by us with our family GP some 18 months after Megan was diagnosed upon our finding out the truth surrounding the child protection procedures we asked the GP, if he had indeed at the time believed that we Megan's parents were trying to starve her to death, to which he replied, and we quote, "Yes, I thought you were trying to kill her!"
The day before Megan was eventually diagnosed we were told that Megan only had around 4 weeks left to live until her organs would fail, in the same discussion we were told that a care order had been arranged to place Megan in the care of the RVI. After Megan's diagnosis we wrote to advise the Social Services that Megan had a brain tumour to which they replied no care order would be taken at that time but that they, and agin we quote "still reserved the right to carry this out at a later stage".
Two days before Megan was diagnosed, it was noticed that her left eye was vibrating, the consultants the follwing day in the meeting where they told us about the care order agreed to arrange for us to see a neurologist, at the Newcastle General Hospital the following day. They believed that the eye vibration could be down to one of 2 things, either Megan's eyes were closing down, the first sign of organ failure as you don't need your eyes to live, or more likely that Megan was suffering from lead poison. At the time, the only thing Megan was eating was the "Winnie the pooh" border around the walls of her nursery. As asked we went to this meeting with the neurologist equiped with the border, the adhesive and the lead based paint, used on Megan's nursery walls.
We owe everything to the neurolgist, he saved Megan's life that night! After only 30 minutes of observing Megan playing naked except for her nappy on his consultation room floor whilst asking us questions about Megan's medical history he diagnosed her, there and then!! no tests, no x-rays, nothing. He stated that he believed Megan has a very large brain tumour and that all the symptoms Megan had displayed were classic brain tumour symptoms and that , and we quote "No parent can starve their child to look like this", Megan was obviously immediately sent for an MRI scan which fully concurred with the neurologists fears, at precisely 7.45pm on Friday the 2nd of March 2001 we were told that Megan had a brain tumour a third the size of brain.
Needless to say a legal case of clinical negligence is being sought against the doctors concerned for the delay in diagnosing Megan, no one can say if this delay, due to there belief that it was ourselves abusing Megan and due to that belief there failure to carry out diagnostic tests has effected Megan's chances of beating this cancer but that is our firm belief.
Those with whom we had entrusted our baby, charged with making her better, nearly killed her, their delay may still be the result of her very premature death. Those in whom we trusted and confided, conspired against us, these are facts, as shown in Megan's medical records, we will fight so that one day justice for Megan and for ourselves will be done through a court of law!
We are doing alot of work behind the scenes with people around the world to try to make chances in the procedures surrounding child protection, many of whom are parents also wrongly accused.
We have deliberately tried not to express emotion on this page, but just imagine how you would feel!!.
We have also not named any doctors at this stage due to legal proceedings and at this stage until negligence is proven we must state that it is only our personal opinion that clinical negligence took place.
March 01 after diagnosis
Megan was connected to tubes
in her cot for 20 hours a day



